Chief Executive Officer (CEO)

Are you an inspiring and compassionate leader who wants to make a tangible difference to people affected by rare bone marrow failure? The charity is seeking a dynamic CEO to guide our organisation into its next chapter, deepening our impact and driving progress towards a cure for aplastic anaemia.

About Us
The charity is the UK’s only charity focused on aplastic anaemia and related rare bone marrow disorders. Aplastic anaemia is a rare, serious blood disorder where the bone marrow fails to produce enough blood cells. This can lead to fatigue, infections, and excessive bleeding, requiring urgent medical treatment. Our mission is to enable life-saving research, provide expert support, and build community networks for those affected. We are small but ambitious, working closely with clinicians, researchers, and patients to ensure people can live fulfilling lives despite their condition.

The Role
As CEO, you will lead our dedicated team, oversee the delivery of our strategic goals, and act as the public face of the charity. You will work directly with the Board of Trustees, the clinical community, and key partners to shape the future of the charity. From leading high-level strategy to engaging with our warm and passionate patient community, this role offers both challenge and reward.

Key details:
•    Role: Chief Executive Officer (CEO) 
•    Salary: £65,000 per annum
•    Contract: permanent, full time
•    Location: Remote (UK-based)

Key Responsibilities
•    Lead the development and delivery of the charity’s strategic plan and business objectives.
•    Foster relationships with clinicians, researchers, donors, volunteers, and beneficiaries.
•    Serve as an ambassador for the charity, representing the charity across healthcare, research, and fundraising sectors.
•    Provide leadership to a small but expert remote-working team, ensuring effective collaboration and empowerment.
•    Drive sustainable growth and innovation, ensuring financial health and strategic impact.

About You
We are looking for someone with strong leadership experience, ideally from the charity, health, or social care sectors, but most importantly, a passion for our mission. You will have:
•    A proven track record in leadership and strategy development.
•    Excellent relationship-building and communication skills.
•    Experience in fundraising, organisational growth, and stakeholder management.
•    An understanding of or lived experience with serious or rare diseases is a bonus, but not essential.

What We Offer
•    Salary: £65k per annum
•    34 days annual leave, including bank holidays (pro rata for part-time)
•    Remote working with bi-annual in-person staff events
•    Pension contribution up to 5% and Death in Service insurance
•    A supportive, inclusive work culture that values flexibility and work-life balance

If you’re ready to lead a dedicated charity that’s making a real difference, we’d love to hear from you. To receive an Information Pack for this CEO role with full details, including how to apply, please send an expression of interest and (optional but appreciated) a CV or professional profile in confidence to our consultant, Jenny Hills at Harris Hill, executive at harrishill co uk. For an informal and confidential conversation about this position, please contact Jenny at the above address with suitable times to talk.

Closing date for applications: 9am Thursday 14th November 2024.

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.