Trustee

As a result of increased awareness and signposting for individuals receiving a positive CACNA1C diagnosis, our community is increasing in size. Therefore, we are seeking new Trustees who will take an active role in the board, bringing new skills and ideas for how to support our community, advocating for improvement to CACNA1C diagnosis, outcomes and quality of life and to support CACNA1C research initiatives.  

Our new Trustees will be responsible for setting the overall strategy and direction for TSA, as well as monitoring the charity’s activity to evaluate progress towards our objectives and goals. 

This can include making sure the charity complies with regulations, overseeing financial management and monitoring financial performance, creating and implementing policies and procedures to mitigate risk, and supporting the charity’s operations. Additionally, you will also have the chance to help develop fundraising strategies, including applying for funding and grants to support TSA’s work. Whilst representing the charity externally, there will also be plenty of opportunities to advocate for TSA’s mission of supporting individuals and families affected by CACNA1C-related disorders and raising awareness for this rare disease.